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Chapter 180 Announcement of SMA drug price, National Rare Disease Patients Alliance

During this period, the clinical phase III trials of sma gene drugs have been progressing steadily.

The experimental report has finally come out. Since it is an orphan drug and a breakthrough medical achievement in China, the Food and Drug Administration has given great cooperation and support and opened a green fast-track approval channel.

After the price was determined, Sanqing also negotiated with the medical insurance fund and included this SMA gene drug in the medical insurance catalog.

Innovative drugs are generally negotiated by each pharmaceutical company with medical insurance to decide whether to enter medical insurance. This kind of negotiation mainly involves price reduction and exchanging quantity for price. Innovative drugs are usually not centralized, and centralized purchasing only targets generic drugs.

There is a big difference between medical insurance negotiation and centralized procurement. Centralized procurement forces hospitals to use the winning bid products.

The negotiation of innovative drugs only determines whether to enter the medical insurance, and does not stipulate what products doctors use. The purpose of entering the medical insurance is only to reduce the patient's out-of-pocket payment and increase its popularity.

The price line for drugs entering medical insurance has always been stuck at 300,000 per year. Drugs that cost more than this are exempt from discussion. The genetic drug Sanqing is just stuck.

Coupled with the support policies for orphan drugs in various places, the proportion of patients paying out of pocket will be correspondingly higher.

Subsequently, Sanqing announced the price of SMA gene medicine, which instantly caused an uproar across the Internet.

When I heard that the domestic drug price is only 300,000 yuan, after enrolling in medical insurance, the patient only needs to pay a few hundred thousand yuan out of pocket to be completely cured.

Many family members of patients were moved to tears.

When netizens compared the imported drugs with high prices, they were all moved.

"14 million vs 300,000, I have nothing to say."

"What is socialism? This is it!"

"Furthermore, Sanqing also has a charity channel for donating medicines, which specifically cares for poor patients. General Health is worthy of being a people's entrepreneur."

"With Sanqing here, I no longer have to worry about not being able to afford medical treatment or taking medicine."

"This price is affordable for many families. Compared with imported medicines that cost millions, it is not very friendly. To be honest, I am worried that Mr. Wei is selling medicines at a loss."

"Sanqing has always been a conscientious pharmaceutical company. There is nothing to say. I am ready to support a wave of Sanqing products."

"Sanqing has developed orphan drugs one after another. It seems that it is going to show its power in the field of rare diseases. Patients with genetic diseases are finally saved. It is really a blessing!"

"Before, there were idiots on the Internet who said that individuals with genetic defects and genetic diseases should be prohibited from having children, and legislation should be enacted. Bah, let's see if I don't slap him in the face."

"It's not harsh to say the truth. People with genetic defects should get tested before giving birth. This is also for their own good. Not all genetic diseases can be cured now. Even if there are medicines that can be cured, it is better to get tested to avoid

Giving birth to a sick child can save hundreds of thousands in treatment costs, which is also a good thing."

"Gan, let's be a man upstairs. According to what you said, sick people have no reproductive rights?"

"It really doesn't hurt to stand and talk, so people with genetic diseases deserve to die? This is simply unreasonable."

"Haha, ignore this idiot. Sanqing has made his choice through actions and is constantly developing genetic medicines."

Overseas, Western netizens were speechless after hearing the expensive price of 300,000 US dollars.

This price is also sky-high for them.

Although it is much cheaper than the $2 million drug, it is still out of reach of most people.

Even with insurance, out-of-pocket expenses are very expensive.

And not everyone has expensive health insurance.

That damn Chinese Wei Kang can create miracles every time, constantly overcome medical incurable diseases, and save countless patients and families.

But why is he so unfriendly to people in overseas countries?

Why do patients in Western countries have to endure such expensive medicines?

Anti-cancer drugs, specific drugs for Alzheimer's disease, this time it is SMA gene drugs.

Every life-saving medicine is so expensive, and the sickle that harvests the sick is as painful as the death's sickle.

Western netizens love and hate them, and began to criticize Wei Kanglai and Gu Wei on the Internet.

"Fa Ke, this damn Chinese, is simply more capitalist than a capitalist."

"Why isn't he from the Eagle Country? Then the price gap with China won't be so big."

"You should be lucky that he is not from Eagle Country, otherwise this drug would have sold for US$3 million instead of US$300,000."

"God, at least he made Novartis and Roche lower their prices, didn't they? You know, Novartis's SMA gene drug costs US$2 million."

"Shit, my newborn daughter has this disease. It seems I have to take her to China for treatment."

"Good idea. I just came back from China for medical treatment last year. The medical level there is quite good, no worse than that of Eagle Country, and the price is low. The price of Sanqing's medicine is also very low there. By the way, you can also travel. China is also a beautiful place.

It’s a country that’s worth visiting anyway, highly recommended!”

"Thank you for the advice upstairs. God bless you. I have always gone to Tianzhu to see a doctor, but they don't have Sanqing medicine there. I feel it is better to go to China."

Some family members of SMA patients who couldn't wait, after some difficult considerations, resolutely embarked on a journey to China for medical treatment.

As expected, the stock prices of Novartis, Bogen, and Roche have dropped to their limit again.

The CEOs of the three companies announced a new round of price cuts with livid faces.

At this point, the SMA gene drug market has shown a situation where the top four are vying for supremacy, and prices have dropped to the range of US$300,000-500,000.

As a result, Sanqing earned the title of ‘exorbitantly priced medicine harvester’.

In the face of patients, no matter how arrogant or stubborn a pharmaceutical company is, they have to lower their high heads in front of Sanqing.

You know, what can make pharmaceutical companies lower their prices is never anything else, but the entry of competing products.

The announcement of the price of sma genetic medicine, the successful development of menkes genetic medicine, and the release of the gene editing documentary.

This series of events has undoubtedly established Sanqing’s absolute authority in the field of gene therapy for rare diseases.

All rare disease patients across the country, as long as they have access to the Internet, know that Sanqing can and is willing to develop genetic drugs.

Even ill-informed patients received strong recommendations from doctors in the hospital.

"Your child's disease is a rare disease caused by genetic mutations. In the past, there was no way to completely cure it. You could only take some medicine to relieve it. But now Sanqing is carrying out gene therapy in this area, and it is very likely to develop a complete cure."

Genetic medicine for healing.”

"You can download an app called Longtu and pay attention to this information. Maybe there will be good news soon."

Every doctor says so. They are actually very sad when facing terminally ill patients. They have seen so many lives and deaths. Which doctor doesn’t want to save lives and heal the wounded?

Now that there is hope, we must tell the patient to live strong and wait for the glimmer of light in the darkness.

With the huge publicity from doctors and the Internet, and the crazy Amway rush from the family members of patients, it’s like tap water.

The Longtu app is like a spark, quickly spreading among rare disease patients.

Even the popularity rate among ordinary netizens has been increasing steadily, reaching an astonishing number.

“My God, the Longtu app has already had 15 million downloads, and it’s still growing by hundreds of thousands every day!”

Xiang Gaofei looked at the numbers in front of him and was so shocked that he almost jumped up from his seat.

He and Wang Dong looked at each other, unable to hide the joy on each other's faces.

Xiang Gaofei grabbed the data report and said with a look of ecstasy: "I will report to the General Guard and seek more resource support as soon as possible."

Wang Dong raised his fist and shouted excitedly: "I have been working for so many years and I have never seen such good data. Next, let's continue to be steady and make progress step by step."

Xiang Gaofei's expression suddenly became enigmatic: "That's wrong, this time we are going to take advantage of the momentum to pursue and fight fiercely to strive for a wave of traffic and push the data to the peak. Ten million downloads are just the beginning, and there is still a long way to go.

The limit has not been reached.”

Wang Dong was stunned: "Didn't you say that there are only 20 million patients with rare diseases? Let's continue to be stable, and sooner or later we will reach this number."

Xiang Gaofei raised the corners of his mouth and said triumphantly: "Who told you that Longtu can only be used by patients with rare diseases? As long as they are patients, they are our customers. Even if they are not patients, they will be sooner or later.
Chapter completed!
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